The Organization is called Hydrocephalus awareness network, Uganda. The Organization is fully registered according to the laws of the Republic of Uganda; registration number- 0115 of file NO. MIA/NB/2017/08/95 PO BOX WAKISO and provides equal opportunities regardless of an individual’s race, creed, ethnic origin, political belief, gender, disability. It started in 2011 as a CBO my Mbabazi patience however in 2017; it was registered as an NGO.

The Organization offices are located in Katabi Entebbe Wakiso district in the Republic of Uganda.

HSI gained NGO status in 2017 after registering with NGO Board. We create awareness to the Community. We advocate for our children’s rights , rehabilitate both parents and children due to lack of stigma and refer for specialized treatment

Our Focus

• Hydrocephalus literally means water in the head in greek.
• Everybody has some fluid /water called Cerebral Spinal Fluid (CSF) in the brain.
• In hydrocephalus, there is an abnormal increase/too much water in the brain, therefore the
• ventricles (chambers) in the brain enlarge to accommodate the excess fluid causing a big head or increase in the head size in young children.

• Hydrocephalus occurs when the fluids is not removed from the brain as  fast as it’s
• produced. It accumulates within the skull, compresses the brain and damages it.

Normally the brain is protected from damage by;

• The bones(the skull) that cover it.
• Fluid/water called cerebral spinal fluids(CSF)

USES OF Cerebral Spinal Fluid (Water)

• Protects the brain from injury.
• Provides nutrients/food to the brain.
• Makes the brain lighter than it actually is.

• Water (CSF) is produced in small spaces in the brain called ventricles . The water normally flows along three ventricles in the brain and the spinal cord and it is reabsorbed into the bloodstream through special veins.
• As water is produced, more is absorbed at a constant rate so that the amount remain is the same.

There are three main causes of hydrocephalus;

Blockage in the brain, this prevents removal/flow of the water from the brain. These blockages may be caused by;

• Head injuries,
• Infections of the nervous system like meningitis,
• Brain tumours and spina bifida or cysts.

• The brain makes too much fluid/water that cannot be reabsorbed as fast as it is being produced (too much choroid plexus.)
• Sometimes hydrocephalus develops while the child is still in the uterus (mother’s womb) here the cause is unknown.